To response to your question. IDC’s March are focus on Clause 14 (9)(8-9), and also on some words are hidden in the Bill that are relevant to Deaf people.

Stop Eugenics has not email to the official email address or leave a comment on our blog, or did not mention the Islington Deaf Campaign name so there were no response.

There will be a vlog soon launch relevant to your answers.

http://www.ideafc.blogspot.com

We have a response from our MP, and a response from Health MP but he choose to pass to NHS which seems Deaf Community is not his top prority.

We aims three conditions – stop the bill to removing deaf genes, and we demand a BSL Act, and getting deaf schools back (BSL and billigualism).

This is clear and extremely important to support the March. This is danger of deaf community – need our strength back on the Marching, and make the Government aware!

You need to return to the reasons why the campaign was set up in the first place; Baroness Deech made her comment in the Lords that this Clause refers to the deaf gene; the Department of Health referred to it as an example of which gene it would apply to; and the Genetics Commission failed to adequately consult with deaf people in regards to their views and feelings on genetic issues. So this is far from a ‘non-issue’: there are powerful people who consider deafness to be an ‘abnormal condition’, an ‘illness’ or a ‘life threatening disease’; it is anything but and that’s why they are being challenged on this specific Clause, amongst other reasons. It will be much easier to upgrade that specific Clause if it becomes law, much harder to remove it.

If it is so inconsequential, then it should be a very simple matter of removing the Clause; but those requests were not taken up by the Lords and MP’s replies to individuals have been far from positive, and so the campaign continues.

There were 25 high profile online requests, including a 3 TV stations (One of them the BBC), for a deaf couple in the IVF program to speak out, they didn’t find one. There is a view in Islington the ‘choice’ relegates deaf people are unworthy of life, this is not the case, and it would only and potentially affect the NEXT generation not his one, and only via IVF programs now. As there are also many many different genes pertaining to deafness, there is no real guarantee they could spot them all anyway. People still go deaf after birth via various unrelated genetic issues…

Because British medial professionals have read the American experience (The deaf lesbian issue was a turning pint), they wanted legal cover to avoid claims of designer children (Forbidden in the UK, ALLOWED in the USA !), and to avoid a parent suing the system when a choice is there, the issue of ‘letting nature take its course’ is undone, because lawyers stepped in, so they cover their back, genetic ID is defeating natural selection.

Prepare for insurance companies and many others latching on to genetics too, because once they I know for sure you could produce a child with a terminal and ‘costly’ illness, they won’t cover you, banks won’t give you mortgages ! The RNID published a report this week, that various deaf and loss aspects cost the UK 16 billion every year…. governments will want to save money there. Since the deaf gene can be removed prior to fertilization no laws are being broken, life hasn’t started.